UCB Harnesses the Voices of the Crohn's Disease Community during
Crohn's and Colitis Awareness Week
ATLANTA, Nov. 30, 2012 /PRNewswire/ -- In recognition
of Crohn's and Colitis Awareness Week (December 1-7), UCB, Inc. is directing a national
effort to educate the public about Crohn's disease and inspire
those living with the condition to speak out about it. The
campaign will hinge on real stories from real people
succeeding in the face of Crohn's disease, adding clarity to a
misunderstood condition while providing a platform for Crohn's
patients to engage and draw support from one another. Joining
the cause are a diverse group of public figures who live with the
condition – including Olympic kayaker Carrie Johnson and guitarist for the Grammy
Award-winning band Pearl Jam Mike McCready – as well as everyday
heroes like Lois Fink, co-founder of
the IBD and Ostomy Awareness Ribbon, and Crohn's Advocates Cindy
W., a community volunteer, and Ray C., a race car driver.
December 1-7 was designated
Crohn's and Colitis Awareness Week in 2011 by the U.S. Congress[i]
to educate the public about Crohn's disease and ulcerative colitis,
two painful Inflammatory Bowel Diseases (IBD) that affect 1.4
million Americans. Approximately half of the people with IBD
have Crohn's disease, a chronic disorder that can be extremely
painful and difficult to diagnose and treat. [ii]
Crohn's disease can take an emotional toll in addition to its
physical symptoms. Tasks like working, running errands,
traveling and maintaining social or romantic relationships can
often present a challenge. Due to the persistent stigmas
surrounding Crohn's disease, people living with the condition can
experience feelings of embarrassment, confusion, frustration and
isolation.
"Learning I had Crohn's disease was overwhelming at first, and I
felt isolated by how little I knew about the condition and the
affects it would have on my life. By educating myself and
reaching out to people succeeding with Crohn's disease, I quickly
reached the point where I could focus on the positive and live my
life," said Johnson, who was diagnosed with Crohn's disease in
2003. "Awareness and education can be incredibly
powerful. I want to show the world that by putting a name and
a face on Crohn's disease, we can break down the isolating barriers
and inspire hope in a better future."
UCB Drives Awareness and Action
As part of a
week-long tribute to the vibrant spirit of the Crohn's disease
community, UCB will share videos capturing success stories from
courageous individuals with Crohn's disease on the Crohn's & Me
Facebook page. Videos will feature inspiring individuals
living with Crohn's disease, including Johnson, Fink and the
Crohn's Advocates.
In addition, Crohn'sAdvocate™, a program that includes a team of
more than 20 Advocates committed to educating the public about
Crohn's disease and overcoming stigmas associated with the
condition, will mobilize in early December to share their
experiences, dispel myths and provide hope to others seeking to
live their best life with Crohn's disease. The Advocates will
share their stories about living beyond the boundaries of Crohn's
disease on Facebook. The Advocates will also take to social
media alongside Carrie Johnson to
spotlight UCB's support programs that help people live beyond the
boundaries of Crohn's disease.
"Crohn's and Colitis Awareness Week is the perfect time to
celebrate the significant strides made to educate the public about
Crohn's disease," said Carol Satler,
MD, PhD, Vice President, U.S. Medical Affairs, UCB, Inc.
"This progress has been driven by individuals willing to
share their personal stories about living well with Crohn's
disease, which creates heightened visibility for an often
misunderstood and stigmatized condition. As a patient-centric
company, we at UCB are using this time to celebrate those who
courageously inspire others to talk about Crohn's disease and the
importance of proper diagnosis and treatment."
More information about Crohn's and Colitis Awareness Week can be
found on the Crohn's and Colitis Foundation of America
website. Information on the many resources UCB offers for the
Crohn's disease community can be found at www.CrohnsAndMe.com or
www.facebook.com/CrohnsAndMe.
UCB will also collaborate with HealthyWomen to spotlight Crohn's
disease among the millions who depend on the organization for
answers to pressing and personal healthcare questions. Visit
www.HealthyWomen.org for information on managing Crohn's disease,
and look for a guest blog post from Carrie
Johnson on how she overcame her condition and qualified for
the Olympics not once, but three times.
About Crohn's Disease[ii]
Crohn's disease (CD) is a chronic, progressive, destructive
disorder that causes inflammation of the gastrointestinal (GI)
tract, most commonly at the end of the small intestine (the ileum)
and beginning of the large intestine (the colon). If not
effectively treated, it may result in the need for surgery and
hospitalization. CD has been estimated to affect as many as
700,000 Americans. People with CD can experience an ongoing
cycle of flare-up and remission throughout their lives.
About UCB
UCB, Brussels,
Belgium (www.ucb.com) is a global biopharmaceutical company
focused on the discovery and development of innovative medicines
and solutions to transform the lives of people living with severe
diseases of the immune system or of the central nervous system.
With more than 8,500 people in about 40 countries, the
company generated revenue of EUR 3.2
billion in 2011. UCB is listed on Euronext Brussels
(symbol: UCB).
About the Crohn'sAdvocate™ Program
Since 2009, UCB has
supported the Crohn'sAdvocate™ program, which aims to connect,
educate and empower those living with Crohn's disease through a
variety of resources, guidance and support. The program
includes a team of more than 20 inspiring Crohn's Advocates who
raise awareness of the condition by sharing with others their
personal journeys living with the disease. The program also
publishes Crohn'sAdvocate, a free magazine that contains
fact-based educational articles, reader-submitted content and
profiles of advocates, celebrities, athletes and everyday heroes
who live beyond the boundaries of Crohn's disease.
For further Information:
Andrea Levin, Associate Director, U.S.
Communications and Public Relations
770.970.8352, Andrea.Levin@ucb.com
Dena Koklanaris, Cooney/Waters
Group
212.886.2228, DKoklanaris@cooneywaters.com
[i] GPO.gov. Senate Resolution 199. Accessed 10/25/12.
http://www.gpo.gov/fdsys/pkg/BILLS-112sres199is/pdf/BILLS-112sres199is.pdf
[ii] Crohn's & Colitis Foundation of America, About Crohn's
Disease. Accessed 8/24/12.
(http://www.ccfa.org/what-are-crohns-and-colitis/what-is-crohns-disease/).
SOURCE UCB