The European Organisation for Rare Diseases awards Orphan Europe for exceptional contribution to reducing the impact of rare ...
26 Février 2014 - 12:08PM
EURORDIS (European Organisation for Rare Diseases) announced
yesterday that Orphan Europe has been awarded the prestigious
EURORDIS Company Award for distinction in the field of rare
diseases. The award, presented at the EURORDIS ceremony held in
celebration of Rare Disease Day in Brussels, recognises Orphan
Europe's established track record in the field of orphan drug
development. The award also distinguishes Orphan Europe's
engagement with the rare disease community in improving the
diagnosis and management of these diseases. Orphan Europe achieves
this through work to establish scientific networks, engaging with
patient organisations and its staff volunteering programme. Most
lately Orphan Europe funded the Recordati Rare Diseases Foundation
for advancing knowledge in rare diseases through independent,
professional education and training.
The EURORDIS Awards are presented to pioneering
companies developing treatments for rare diseases. The winners are
selected based on the number of treatments approved or in
development, the company policy on access to drugs, the track
record with patient organisations and partnership with
EURORDIS.
"We are honored to receive this award in
recognition for our work in rare diseases. At Orphan Europe we
understand the devastating effect of many rare diseases and the
urgent need for companies like ours to develop new innovative
treatments", said Corrado Castellucci, M.D. Vice President Orphan
Drugs at Recordati, who accepted the award on behalf of Orphan
Europe. "This award is a great thing for every person working at
Orphan Europe, a company which places people with rare diseases at
the heart of what they do".
"We are honoured to acknowledge the commitment
and achievements of the recipients of the EURORDIS Awards on the
occasion of Rare Disease Day 2014. This year, Rare Disease Day puts
the spotlight on Care. Each of the 11 EURORDIS
Award 2014 recipients is making a significant and unique
contribution to improving access to the many different kinds of
Care people living with a rare disease need and deserve. Working
together, we are starting to make a real difference to the millions
of patients and families throughout Europe who live with a rare
disease," -Yann Le Cam, Chief Executive Officer,
EURORDIS
In Europe a rare disease is defined as a
condition that affects less than 5 per 10,000 inhabitants, and is
fatal or severely debilitating. There are about 7,000 such
diseases. While each disease is rare, when considered together they
affect over 25 million Europeans or almost 1 in 10 people. There
are certain challenges that all patients and families affected by
rare diseases share.
About Orphan Europe
Orphan Europe is a pharmaceutical company which
provides treatments for patients with unmet medical needs suffering
from rare diseases. Orphan Europe, part of the Recordati group, has
nearly 25 years' experience in bringing orphan drugs to market for
rare diseases with 7 products to date and more in the pipeline. For
more information, visit www.orphan-europe.com.
About the EURORDIS Awards
2014
The EURORDIS Awards acknowledge the exceptional
contributions of patients' advocacy groups, volunteers, scientists,
companies, media, and policy makers toward reducing the impact of
rare diseases on people's lives.
For information:
Orphan Europe Director of External Affairs and
Rare Disease Partnerships: Samantha Parker +33 1 47739529
sparker@orphan-europe.com
The European Organisation for Rare Diseases awards Orphan Europe
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